Wednesday, January 24, 2007

Post-Catheter Update

The procedure went well! We don't have all of the answers yet, as the final debrief with the doctors will be this afternoon.

What we do know:

-The evil extra vein that showed up in the echogram they did the other week turned out to be a vein that the surgeon had actually closed off! So it is of no concern at all and can be ignored. There must have been some miscommunication/lack of communication between our cardiologists and the surgeon for them to have not figured this out prior to today's heart catheter. But, no matter--this is very, very good news.

-They found that Grant does have elevated pulmonary pressure (the blood that is coming from the lungs into Grant's heart is flowing faster than they want--kinda like when you put your thumb on the end of a garden hose and it makes the water shoot out faster). There is nothing they can do except give Grant time to see of he'll improve. We haven't yet talked about probabilities, long-term impact, etc. We hope to know more soon.

-They discovered that Grant is anemic (he has low levels of red blood cells) which may be contributing to the elevated pulmonary pressure. He had a blood transfusion during his surgery, so this just recently developed as his own blood became a larger and larger percentage of the whole. The short term solution is medication, but we haven't yet talked with them about the cause, how to fix it for good, long term ramifications, etc.

-As Shannon posted, the gut-doctor put Grant on Zantac to treat his bad acid reflux. It is such a relief that Grant's horrific suffering wasn't linked to his heart! He has already gotten quite a bit better. We're going to be taking Grant's nose tube out next week to see if he'll eat enough through the bottle. We think he will which will make our life so much easier, increase the sleep we're getting and will help with the acid reflux.

Our cardiologist that did the cath said "we're not out of the woods yet...". By that he means that if the pulmonary pressures don't improve and the anemia isn't fixed, then worst case scenario is another open heart surgery. Yuck.

As I've been typing this Grant should have awakened from his sedation...but he hasn't. If he doesn't wake in the next 45 minutes then he'll have to stay the night (bummer). And they would then do a blood transfusion while we're here to improve his red blood cell count.

Well, we may not be out of the woods yet, but we certainly see the end of the forest and we're making a beeline for it.

Shannon and I are doing well and are so thankful for all of your love, prayer, care and support.

8 comments:

Bressack said...

Thank you so much for posting! I've been checking the site all day hoping for an update. So glad to hear there is at least hopeful news. Continuuing to send you thoughts, love and prayers! Barbara & Darryl

Michelle and Cooper said...

Jim and Shannon--
As always, we pray for you two and Grant and your families. What a beautiful little boy you have!
Love,
Michelle and Cooper

Jen_hullinger said...

We're so glad to hear that the cath went so well! We'll continue to pray for his complete healing. Lots of love!
Will and Jen

Anonymous said...

Great news from the cardiac surgeon! I am thinking that little Grant is as sleep deprived as the two of you and is enjoying the best rest he has had since being in utero! I am praying and believing that his breathing will greatly improve with his newly added red blood cells. Continuing to pray for the peace that passes all understanding for mom and dad.

Anonymous said...

Dear Shannon and Jim and Baby Grant,
We read lots of hopeful possibilities in these last updates....Jesus, we lean heavily on you these days. We trust you implicitly and thank you for giving Grant parents of courage and faith.
Love,
Sheila and Rog

Learning As I Go Blog said...

Many many prayers are being said for Grant! You two are amazing parents!!!

Danielle
kevinanddanielle.blogspot.com
(Ryan's client)

Faireypost said...

Shannon & Jim

Glad to hear that the last day has bought good news. A huge thank you to you both for the constant updates.

Big hugs to Grant
The Faireys xxx

Anonymous said...

Were praying for wisdom for you both, Love Rog & Sheila