Well, I seem to have caught Grant's bug. Not fun. But, Grant seems to be holding his own. The visiting nurse came this morning and said his lungs sound amazingly clear for what he looks like on the outside (snot city). I really feel like God is protecting his lungs. Thank you for praying.
P.S. The doctor never called today regarding the RSV or flu swabs they took yesterday, so I'm assuming he doesn't have them. Another big thank you, God.
Wednesday, January 30, 2008
Tuesday, January 29, 2008
Grant is sick!
Please pray for Grant. He was up all night coughing and has a nasty cold. We just got back from the doctor's and he has an ear infection and a yeast infection (on his face). The doctor also did swabs for RSV and the flu and said she'll call tomorrow with the results.
Grant has been doing so well, but the doctors have been warning us how serious it would be if he got sick. Please pray that he does not have the flu or RSV and that he heals quickly. Thanks.
Grant has been doing so well, but the doctors have been warning us how serious it would be if he got sick. Please pray that he does not have the flu or RSV and that he heals quickly. Thanks.
Sunday, January 27, 2008
Tuesday, January 22, 2008
Graduation Day
Grant graduated from occupational therapy this weekend! Kia, his OT, who has been working with us for about 9 months now said that she has never, ever seen a child improve as fast as Grant. She said that at this point the average person could not tell that he's had any difficulties in the past, and if he continues on this trajectory, then even a trained professional may not know he has struggled with his motor skills. So, she unofficially graduated him, but wants to see him again in a couple of months, just to make sure he's still on track.
The day after our great appointment with Kia, Grant's physical therapist, Carol, told us that she only has a few small concerns and she thinks he is almost ready for graduation as well. She is going to see us only twice a month now, to continue working on strengthening his right side.
Grant will still continue to see the PT, OT and early intervention teacher from the public schools on a regular basis, but they are making noises about phasing themselves out too. They said that they could graduate him, but he is too much fun, so they want to keep seeing him. As for right now, it is nice to have professionals to continue to check on Grant's progress and challenge him to do new things.
The day after our great appointment with Kia, Grant's physical therapist, Carol, told us that she only has a few small concerns and she thinks he is almost ready for graduation as well. She is going to see us only twice a month now, to continue working on strengthening his right side.
Grant will still continue to see the PT, OT and early intervention teacher from the public schools on a regular basis, but they are making noises about phasing themselves out too. They said that they could graduate him, but he is too much fun, so they want to keep seeing him. As for right now, it is nice to have professionals to continue to check on Grant's progress and challenge him to do new things.
Friday, January 18, 2008
Playing with Grant
I took a few pictures of Grant this morning enjoying his usual morning activities. The first thing he does when he wakes up is runs to the bathroom to see if daddy is still showering. This morning we missed daddy in the shower, so Grant decided to hop in himself, still in his pajamas. When I turned my back on him for just a second he quickly made his way to the trash can and found my old toothbrush inside. He immediately picked it up and started brushing. Gross.
His latest favorite activity is tumbling. Mostly it consists of throwing himself on us, but he does also like to do log rolls across the room while giggling. Just the other day he attempted his first somersault. We're not sure who taught him the somersault thing. The second picture is him getting ready to do some sort of gymnastics move where he comes dangerously close to breaking his neck every time.
Friday, January 11, 2008
A Day to Celebrate
Today we are thanking God. Grant finished weaning off two more medications today. Our friends' baby, Rhyer, finally came home from the hospital after 4 months. Thank you for all your prayers!
Wednesday, January 09, 2008
The Sun is Shining
Today in Michigan the sun is shining and it is almost 40 degrees out. Grant and I thought this was cause for celebration, so we walked to the ice cream store and Grant enjoyed his first "Cold Stone Creamery" experience. When we got back Grant had fun running around the yard chasing his shadow and hitting all of the "for Sale" signs on the street, yelling, "Boom!" Dad taught him to play the "boom" game and Grant loves to hit all objects in the room now and yell, "boom." When he hits the tv he then looks at me and shakes his head. Unfortunately, this doesn't stop him (unless dad is home).
Friday, January 04, 2008
Quarantine Continues
We had a morning full of doctors appointments today and received a mixed report. Grant officially graduated from seeing the GI doc and as a result can come off one more medication. He is very pleased with Grant's progress and thinks there is only a 20% chance that we'll ever have to see him again. Even though Grant is still underweight he is enjoying his bottle (awake!) and is eating better than ever.
The pulmonolgist is still concerned about Grant's lungs. Even though his most recent chest x-rays are his best ever, they still don't put him out of the danger zone. Doc doesn't want Grant to have contact with other kids or be in public places until May. He said that RSV is rampant right now and that he had to put two kids like Grant in the hospital this morning. He said his airways are still too constricted and the lungs too congested to take any chances. So, we continue to keep Grant isolated as much as possible, knowing that an end is in sight. He said we'll most likely have to endure one more winter of this, but by summer of 2009 we should be able to treat Grant like a normal kid. We're still praying for a miracle, that this day would come sooner, rather than later.
The pulmonolgist is still concerned about Grant's lungs. Even though his most recent chest x-rays are his best ever, they still don't put him out of the danger zone. Doc doesn't want Grant to have contact with other kids or be in public places until May. He said that RSV is rampant right now and that he had to put two kids like Grant in the hospital this morning. He said his airways are still too constricted and the lungs too congested to take any chances. So, we continue to keep Grant isolated as much as possible, knowing that an end is in sight. He said we'll most likely have to endure one more winter of this, but by summer of 2009 we should be able to treat Grant like a normal kid. We're still praying for a miracle, that this day would come sooner, rather than later.
Tuesday, January 01, 2008
Happy New Year!
We are looking forward to a very nondramatic, boring 2008. It is amazing to think that last year at this time we were just arriving home from the hospital, learning how to be both parents and nurses at the same time. Grant has come so far. He is doing a great job communicating with us both in sign language and with words. His favorite sign is, "help," which he does 500 times away when he wants our attention, can't reach something or is getting his diaper changed. He is getting 3 new teeth this week and seems to be going through a very sensitive phase. Anytime we say, "no," he starts sobbing and hides his head in our laps.
Overall, Grant is doing well health-wise. We have appointments with both the lung and gut docs this week for our regular check ups. In physical therapy we are working on Grant holding his head straight and putting an equal amount of weight on both legs. Right now he tilts his head to the left when he walks so that he doesn't have to put as much weight on his right side. This is something that we want to nip in the bud right away so that he doesn't develop secondary physical problems from the head tilt. Please pray that we would be able to correct this quickly and easily. Physical therapy is getting a little more challenging as Grant continues to develop his own will and his own ideas of how he wants to spend his time. :)
Please also say a prayer for our friend, Rhyer, and his parents. They have been in the hospital since September, when he had open heart surgery. It felt like forever that we were in the hospital, when it was really only 20 days. I can't imagine what 14 weeks would do to me emotionally and physically. My heart breaks for our dear friends, Bill and Courtney. Rhyer has another heart surgery in March, so we are really hoping they can get home sometime soon and recuperate before they have to do this again.
Thank you for all of your prayers and support in 2007. We are so thankful for our amazing friends and family, and even the blog readers we have never met face to face. God has heard our prayers. We look back at 2007 with thankful hearts.
Overall, Grant is doing well health-wise. We have appointments with both the lung and gut docs this week for our regular check ups. In physical therapy we are working on Grant holding his head straight and putting an equal amount of weight on both legs. Right now he tilts his head to the left when he walks so that he doesn't have to put as much weight on his right side. This is something that we want to nip in the bud right away so that he doesn't develop secondary physical problems from the head tilt. Please pray that we would be able to correct this quickly and easily. Physical therapy is getting a little more challenging as Grant continues to develop his own will and his own ideas of how he wants to spend his time. :)
Please also say a prayer for our friend, Rhyer, and his parents. They have been in the hospital since September, when he had open heart surgery. It felt like forever that we were in the hospital, when it was really only 20 days. I can't imagine what 14 weeks would do to me emotionally and physically. My heart breaks for our dear friends, Bill and Courtney. Rhyer has another heart surgery in March, so we are really hoping they can get home sometime soon and recuperate before they have to do this again.
Thank you for all of your prayers and support in 2007. We are so thankful for our amazing friends and family, and even the blog readers we have never met face to face. God has heard our prayers. We look back at 2007 with thankful hearts.
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