Grant has had a great 24 hours. At the suggestion of another TAPVR mom, we switched to a formula that has rice starch mixed in already. Because it is thicker, the theory is that it is heavier and should stay in the stomach and not reflux. So far he is taking it well (asleep) and sleeping for longer periods at a time. (Up until now Grant's longest nap during the day was around 40 minutes, and that was rare.) But, today he took an hour and a half nap and seems really happy. The only problem is that after a long nap he's not tired again for a while and thus won't eat. So, we continue with our trial and error.
Grant has a really big appointment at U of M this coming Thursday. They will be running lots of tests on his heart, lungs etc. Depending on how things look on Thursday they could do anything from take him off all medications and oxygen (best case scenario) to sending us to a lung specialist (worst case). We are very optimistic and if all is well we hope to join our family in Florida for Easter!
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