Today Jim and I met with Grant's GI doctor. He was extremely helpful. He confirmed what we already knew- that Grant is not eating enough so he is not gaining weight like he needs to be. He does not yet know the cause but said it is time to be aggressive in finding out more data. So, here is a summary of his plan:
1. Get the results of Grant's echo at U of M next week. (He said that if Grant is still having heart/lung issues, then that could be the cause of not wanting to eat. Can you imagine trying to eat while not being able to get enough air?)
2. If the results come back saying Grant's heart and lungs are fine, then he'll do a PH probe. This is a tube down Grant's nose into this belly for 24 hours that measures how much acid reflux Grant is still experiencing. If Grant is refluxing a lot, then this pain could be what is causing him to not want to eat.
3. If the PH probe comes back fine and Grant is still not eating then we'll head to Columbus, Ohio to one of the best "feeding disorder" clinics in the country. It is inpatient, so Grant would be checked in for 2 weeks while they work with him and us on "retraining" Grant to eat. This clinic has a very high success rate and would be well worth the 2 weeks if we got to bring home a child that liked to eat!
4. If Grant does not learn to eat at the clinic and is still not gaining weight, then they would consider putting a g-tube into Grant so we could feed him directly into his stomach.
Please continue to pray for Grant to be healed and for Jim and I to not grow weary.
3 comments:
Hi Shannon Jim and Baby Grant,
We are in a temporary situation with our computer, but had to check in to say hello, Grant is the healthiest baby that struggles to eat I have ever seen....no, I cannnot imagine trying to breathe and eat....there would be a lot of food flying!
With praying parents like you...and an awesome God you serve, I think all the wrinkles will soon be made smooth.Remember you who are God;s beloved..All you who are weary and heavy ladened, Come and I will give you rest...
Love,
S & R
We continue to keep the three of you lifted up in prayer, daily. We also pray that anyone who has anything to do with Baby Grant and you two Jesus filled people will be touched in a way that only God can do. (Sometimes the mysteries of God are intended for things we have no idea what HE is going to do.) May you be blessed in 'HIS' rest. Be restored and refreshed in Jesus' love. Love'n'Prayers~Ken and Ruth (Newaygo County Prayer group)
Two weeks in the lion's den that is Columbus, Ohio?!!! Haven't you two U-M grads been through enough already? I'll be praying extra hard you don't have to go through that pain. AdamZ
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