Sunday, December 30, 2007

Christmas Week 2007

Christmas morning


Grant and Grandma

Aunt Lindsay and Grant relaxing in the hammock

Grant playing in the sand for the first time

Beach shot from our balcony

Grant playing in the pool with his grandpa and uncle Hal



This was the best week of Grant's life so far! He loved the sand, the water and the warm weather. Oh, and the foot shower. That was his favorite. Best of all, everyone stayed healthy. We are so thankful for such an amazing week.

Friday, December 21, 2007

The Explorer

Grant loves to explore. After his morning nap we usually put on his adorable fleece snowsuit (thanks Grandma Nied!)and head outside. Grant loves to touch all of the trees in the yard and dig through the snow in the garden to try to find dirt. When he finds the brown stuff it is like he hit gold and he can't stop laughing.

Playing in the snow

Wednesday, December 19, 2007

Our big boy

We are having so much fun with Grant. He seems to have turned into a toddler overnight. He loves imitating everything that mom and dad do, especially brushing his hair or stealing to keys to pretend to unlock the door. He is adding new words at a rapid rate. As of today he can say mom, dad, grandma, grandpa, ball, phone, water, hot, up and bye-bye. Of course, if you are not a parent or grandparent you may just think he is babbling. :) He loves to touch everything. This weekend when grandpa Niedzinski was here he took Grant on a "touch tour" and carried him around, helping him to touch everything that was normally too high to reach.

Grant also loves to be quizzed on body parts. His favorite is the belly-button. Not only does he like to find his own belly button, but he wants to find the belly button of everyone who he meets. You never know when he'll lift up your shirt and start laughing. We're trying not to take it personally.

Monday, December 17, 2007

A visit from Grandma and Grandpa






Grandma and Grandpa Niedzinski came to visit this weekend and Grant loved every minute of it!

Thursday, December 13, 2007

Good X-Rays!!

We went to U of M today for Grant's one year cardiac check up. After an afternoon of tests, Grant's cardiologist came in the room and said, "his chest x-ray looks good." I asked, "do you mean, good for Grant or normal kid good?" He said, "almost normal kid good!"

Wow! No one has ever said Grant's chest x-rays look good! We are so excited. Grant can start to wean off two of his medications now. He'll be down to only two medications a day. We have not done anything different, so we are totally convinced this is a miracle from our loving God. Thank you, God, for blessing our little boy!

Sunday, December 09, 2007

Grant's birthday video 2

Grant's birthday video 1

Grant and his birthday cake

Happy Birthday, Grant!

Wow. He made it. We made it. It's been one heck of a year. We never could have made it through this year without YOU! The ways that people helped us over this past year are too many to count. Here are just of few of the highlights that we are thankful for:

1. Meals! Did you know I didn't cook until June?! That's seven months of meals. A huge thank you to our friends from the Ann Arbor Vineyard Church who brought us meals in the hospital everyday and everyone at Genesis the Church in Royal Oak and my Community Bible study group who delivered them when we arrived home.

2. Feeding specialists. Countless friends and family members that came over to feed Grant by syringe, medicine dropper, bottle while sleeping, tube in nose and other ways I've probably forgotten. They also sent us an accumulation of two giant storage tubs worth of fancy and bizarre looking bottles, straws, cups and pacifiers in an attempt to help Grant eat.

3. Babysitters. Grant had his first non-family babysitter on Christmas day last year when our friends sat by Grant's bed in the hospital so we could enjoy a meal at the local Chinese restaurant with my family. Since then I have had help from over 50 different women and several trusted men. Most often I was home (at least in the beginning), but they enabled me to get other things done around the house or take a much needed nap. I could not have made it without you.

4. House cleaners. Thank you to the anonymous group from Genesis the Church that bought us a cleaning service for 6 months saved Grant from lots of dirt and germs, and me from stressing out. Four people came to clean at once. I've never seen anything like it.

5. Laundry service. This was mostly my mom. Thank you for not only doing my laundry, but all the many other things you did along the way from babysitting to driving to the random stranger's house you met on the internet to get the Haberman bottle. :) I'm especially touched by you sitting by Grant's bedside early in the mornings in Ann Arbor when it was too painful for me to be there. You've played such a crucial role in caring for Grant this past year--thank you, thank you, thank you.

6. Body guards. These people accompanied me to Grant's many doctor appointments. Did you know he had at least one appointment per week for the first six months of life? More typically it was several. It was both physically hard (with the oxygen tank) and emotionally hard to go alone.

7. Mentors. This group of people saved me from making lots of silly mistakes. Jim's sisters were key in this; thank you! So were moms of other kids with special needs.

8. Therapists to Grant. Kia, Grant's Occupational Therapist and now our close friend, coordinated hours of therapy and training to keep Grant growing and developing despite his early set-backs. Thank you for going above and beyond your job to love us.

9. Therapists to Me (Shannon). My family, friends and especially my sister were consistently there for me. I have never felt so loved. So many of you gave, knowing I didn't have anything to give in return. Thank you for listening and for loving me so well.

10. The Jester. This is my Dad. He stops by every single morning while Grant is eating breakfast to make him laugh. Grant has come to expect him and it is the highlight of his morning. I can't imagine having started our days without it.

11. Errand runners. I never thought that one day I would miss going to the grocery store. I used to hate it. But, I have had so many people going to the grocery store, the pharmacy, Toys R Us etc., I actually think I'm starting to miss running errands. But this group of people has made my life so much easier!

12. The Prayer Warriors. Jim's parents not only prayed with and for us, but they know more praying folk than I can comprehend; they activated prayer chains that go from Florida to India and beyond. Thank you to every single person who prayed for us along the way.

Happy Birthday, Grant!

Monday, December 03, 2007

Extraction

Today will mark our family's third surgery in the past year. Thankfully, it is the least serious- my wisdom teeth! One of my wisdom teeth started coming in last month. It must be some sort of sympathy thing so that I realize how much Grant's mouth must hurt when he is teething. :) Please pray for a quick and easy surgery and recovery.

Last night Grant's physical therapist came over and was super excited by his progress! She said she wished all kids caught onto walking as fast as him. (He doesn't crawl at all anymore.) I asked if that means we are done with physical therapy?! She said that no, he still has some asymmetry (always using his left side to stand up, leads with the left when climbing the stairs etc) when at this age he should use both equally. So, she'll continue working with Grant until his right side is stronger. If we quit now she said he'd most likely have problems with the next set of skills like skipping, jumping etc. In the meantime Grant has been sleeping 13 hours a night because he's so pooped after walking around all day.

Friday, November 30, 2007

Grant Walking

Here is a video of some of Grant's first steps. The cheerleaders in the background are mom, grandma and Carmel.

Monday, November 26, 2007

Thanksgiving

Grant enjoyed his first turkey day, especially mashed potatoes with gravy. He also enjoyed his first real (nonGerber) cookie. Last night Jim and I were talking about all the things we are thankful for. It is easy to get caught up in where we want to be (Grant with healthy lungs) and miss all the mini-miracles we've seen over the past year. It is hard to believe that the happy, turkey gobbling boy used to be on oxygen, not take a bottle, be fed through his nose, didn't like to be held, didn't use his right side etc. He took 17 steps over the weekend and loves to blow kisses to everyone he sees. We are so thankful for all that God has done in Grant's life this past year.

Saturday, November 17, 2007

Our Little Walker

Grant took his first steps this week! He can take anywhere between 3 and 5 steps before he wipes out. He is enjoying his new skill and I have a feeling he'll be running by next week! He continues to be very observant and enjoys copying things we do. He likes to grab the bottle of lotion or hand sanitizer and rub his little hands together. He loves to try to open door knobs and climb on anything he can. Recently I caught him pushing a step ladder over to his babygate to try to climb over. Every day is an adventure!

Thank you for your prayers about the bottle. He is back to taking 2-3 bottles a day!

Wednesday, November 14, 2007

Insurance update

Good news- the insurance problem seems to be resolved. Grant started back up with his therapy this week. Thank you so much for your prayers!

Monday, November 12, 2007

Doctor's visit

We saw the doctor on Friday for Grant to get a flu and RSV shot. It doesn't actually prevent RSV, but it would make it not as serious if he did get it. We continue to carry Lysol spray around the house. :) The good news is that he's finally weighing in at over 20 pounds. The bad news is that he is starting to reject the bottle. It has been such a treat the last few weeks to rock him and feed him in my arms. Not to mention the extra calories that he's been getting! (He's not really into drinking formula from a sippy cup- just water. )We're not sure why he's swatting the bottle away again, but it is discouraging to me. Specific prayer requests:

1. That Grant would continue to eat well and enjoy the bottle
2. That Grant's lungs would be completely healed
3. That I would stay positive and creative being indoors (and isolated) with Grant this winter
4. That my body would be completely healed (still doing PT for ankle and recently started PT for tendinitis in my wrists, thumbs and elbows)